Riley Eve Casey

Jess at 24 weeks We have been waiting for this appointment. Finally we were going to go to the Mater Hospital in Brisbane to meet with a Paediatric Cardiologist! This was significant because we have been hoping to get a final answer on Riley's condition. In the interim we have spent even more time googling stories of people who had been to the Mater Hospital for similar conditions trying to prepare ourselves for the kind of life we could be in for over the next year. We were met by Dr Gooi (who I had been told looked like Jeff from the Wiggles) and began our scan, throughout the whole appointment we sat and watched Riley's special heart beating on the screen. Soon we were joined by a lady named Karen who is a Paediatric Cardiac Care Co-Ordinator; as the scan dragged on she kept our minds busy asking us questions about our lives and how we have been coping through the whole process. Dr Gooi finished and let us know that Riley definitely has Double Inlet Left Ventricle wi

Some of you may know this and some of you may not but we have a very special little girl. We haven't met her yet, haven't even gotten a hold but we know that she is special. We got our first glimpse of her when she was only eight weeks old, at that time she looked more like a blob. Not human-like at all. But we knew she was was going to grow into someone beautiful. Our next glimpse was at twelve weeks then twenty week mark, we were looking forward to this scan because we had always planned to find out what gender our baby was. We didn't like (or more like probably I didn't like) having to wait and see, at least we could start preparing. What we were not prepared for was that the sonographer struggled to get a good look at the heart; she got Jess to take a walk, move all around, come back a few times until she got a very good look and I am thankful that she did. She let us know that she had concerns about what she was seeing and decided to let another sonographer